
Motor Neuron Disease is when messages from nerve cells in the brain and spinal cord are disrupted, the result being gradual muscle weakening, and wasting away which eventually destroys the cells that control muscle activity for speaking, walking, breathing, and swallowing. Though the prognosis is different for everyone, in "Mr. Wayne’s" case he is in his third and expected final year of the disease. Though I did some reading to understand exactly what was going on, most of my knowledge about the effects of the disease I have to admit came from the New York Times bestseller…

Sometimes I have no choice but to just laugh about different situations I have found my self in over the years. This job for instance almost forces an “executive assistant” to experience a roller coaster worth of emotions and possible psychological counseling for the not so thick skinned. Though I have learned that I’m capable of handling some pretty crazy stuff, it ceases to amaze me the curve balls we are thrown in life. What originally started as a job to assist him in lighting cigarettes (yes, really.) has turned into a position where I am doing way more then I ever imagined doing for anyone… From watching Pixar movies, helping with finances, to even writing letters from beyond the grave, I am learning a book full of life lessons: more then I could have ever learned from good old Morrie.
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One of his sketches |
Just another chapter in the book of life, my eyes have once again been opened to the beauty of living to the fullest when you can. Spending 30+ hours a week with a 40 year old dying man will make you appreciate what you have and realize that no matter your problems, they could most certainly always be worse. "Mr. Wayne", a previous creative arts director for numerous magazines and TV shows in Sydney, could quite possibly one of the most eccentric and artistic people I have ever met. We discuss lots of different matters during my 9 hour, and sometimes 24 hour shifts, but some of the most momentous are when we discuss theories and experiences in life. For instance he has explained to me a couple times one of the biggest issues he has with his illness is the regret he feels about delaying his dreams of finishing a comic book he started when he was younger. After having shared with me the book in progress I can understand the disappointment of not finishing and fulfilling a passion you thought was destiny. Constantly reminding me to fulfill dreams, and do what I want now, he can be pretty inspirational considering the circumstances
Though obviously the job can be pretty morbid at times, 4 months into it I have realized I have no choice but to be in it for the long haul. As sarcastic and quirky as most of the character personalities in his sketches, "Bruce Wayne" has become a good friend whose advice and opinion I have sought out more than once. Oddly enough, I am thankful to have such an interesting unconventional boss. Maybe I can be a little overly optimistic at times. But all in all, sometimes I just have to smile when I think about how I found a really good friend in
That is all. Have a wonderful day!!!
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